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Stricture, Stricture, Why Won’t You Go Away?

November 30th, 2010 Comments off

esophageal-strictureAs most of you know I finished chemo up 3 weeks ago this week. I met with my GI doc a week after that last dose and he now does not consider me a cancer patient any more.

That is great news!

Although I am no longer considered a cancer patient, I am now considered a stricture patient. The stricture I have was caused by scare tissue in my esophagus from the surgery that I had back in June which removed all the cancer. Since the surgery I have had several dilations and 2 stents due to this stricture.

The last stent was taken out 4 weeks ago and I have started to have trouble swallowing again. It started on Thanksgiving and has been consistent since then. I had a barium swallow yesterday and it confirmed that there is a narrowing of my esophagus where the surgery was at. No cancer, nothing like that, just scare tissue.

I am having another stent placed on Thursday

So I am no longer battling cancer but being inconvenienced by 1 cm of scare tissue. Yes, just 1 measly centimeter of tissue. It may not sound like much but it does make a difference. The standard esophagus is anywhere from 18 to 25mm and mine is about at 6-7mm at the stricture point right now. What that means is that I am basically on a liquid/mushy food diet right now.

The Real Issue

The real issue here is that putting stents in and taking them out every 6-8 weeks is not a viable long term solution. What we are doing is buying some time, and space, that will allow us to do some research and let me eat normally – for now.

What we really need is a long-term solution.

The issue is that there is no textbook answer for what to do in this situation. Dilations work for some people – they do not work for me. Stents work for some – not me. Another surgery has not been ruled out but my wife, GI doctor, and I really want to go down that road if it can be avoided.

So we are doing research.

We are trying to see what other solutions their might be out their for a tough-throated person like me. We are only one day into looking into it so we do not have any viable solutions at this time. The internet is wealth of information though so I am sure something will pop up sometime soon. W also have our awesome GI doctor as well looking into solutions.

Still Thankful

Despite not quite being done with the after affects of dealing with cancer I am still thankful for where I am at. This issue is not life-threating but it is inconvenient. I can deal with inconvenience. Really, I can.

I believe that we will find a solution and that this will no longer be an issue. It is just going to take some time like everything else in life.

Thanks again to everyone for their support while we work this out. 

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The Easy Way to Integrate WordPress and bbPress

June 4th, 2010 Comments off
I had tried messing around with bbPress way back when and it wasn’t the easiest animal to tame. Recently though bbPress has graduated to version 1.0 and is much easier to tame. Especially usefully is it’s built-in integration with WordPress. I have to admit that my first attempt at getting bbPress and WordPress playing together [...]
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My First Post on The Gluten Free Journey Website

April 26th, 2010 Comments off

So here I am making my first post on a website that I never thought that I would create – I website about eating gluten free. I have never been the type of person that would put any real emphasis on what I ate. That all changed the day that I was told that I have celiac disease.

Celiac disease, if you don’t know, is an autoimmune disorder that basically tells your body to attack and kill parts of your small intestine because you ate some wheat (which contains the gluten protein). It is not curable but it is treatable. The treatment is to not eat anything that contains gluten for the rest of your life. Now that sounds pretty dramatic but in some ways it is.

So what has gluten in it?

Gluten is in wheat (including kamut and spelt), barley, rye, and triticale.

So what types of things have gluten in them?

Pretty much all breads, cakes, crackers, and cereals. Wheat itself or its byproducts are also used in a lot of sauces and as a binding agent in medications (pills) and whatnot. It is pretty much everywhere.

When treating celiac disease with a gluten free diet the idea is not to eat any gluten whatsoever. Some people say that after your intestines heal that you can eat some but that does not work for everyone. We will see if that works for me someday.

The idea behind this website is so that I can share my experience in trying to live the gluten free life. At the time of writing this I have been on the gluten free diet for a little over a week and it has been hard. I am still in the discovery mode of trying to figure out what I can eat. I know it will get easier as time goes on (I keep telling myself that) but at the moment it is not too fun.

This is going to be an interesting journey. I am only 34 years old and have many years of gluten free-ness to go. We will see how it works out .

If you want to know more about me and what got me to the point of being gluten free you can head over to my About page and read some more.

If you are just starting out in the gluten free diet and are starving you can check out My Menu for a place to grab a quick bite to eat.

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I’ve Decided to Become Social

February 10th, 2010 Comments off

Actually I have been “Social” (Facebook, Twitter, etc) for a while but nowhere on the web could you find be being social all in one place.

Well now you can.

Right over to the right hand side I have a whole bunch of little icons linking me to the rest of the world. So if we are linked up in one place now you can link up with me in other places as well.

See you around the social arena!

P.S. Here are the links also:

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My Resume Has Been Updated

January 25th, 2010 Comments off

I spent some time to get my resume updated this morning. Most specifically I added my most recent employer which was Solarwinds. Also added were .txt and .pdf version of it.

I am not currently looking for a position but as soon as I get the good results back from my PET/CT scan next week I plan of starting to look. My energy has been great and I am expecting that it will continue to stay that way.

If you know anyone that is looking for a web or software product manager I would appreciate you giving me an honorable mention ;-) .

You can see my resume on the resume page here.

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A Couple of Updates at danmasters.net

January 22nd, 2010 Comments off

broom I have done some cleanup here at the ol’ blog.

The first you may notice is a new design or what we like to call in the blogosphere as a “theme”. I would like to take credit for the design but unfortunately I did not design it. Cozmos Labs did and I think they did a great job. I made some enhancements here and there for my liking.

Another change that I did to the site was to eliminate the  daily Twitter rollup posts. They were kind of redundant and annoying so they are all gone. You can see my tweets in the column to the right if you are really that much into Twitter.

The last thing I did was to add my resume as a page again since I will need to be getting a job here in the near future. It is kind of up-to-date in that it is the resume that I used to get my last job. It does not have my last job that I had for a whole 7 weeks on it though. The reason for this is long and irrelevant to probably everyone in the world so I won’t bore you with the why. I will say that I will update it soon.

Enjoy the updated site and please let me know if you come across anything that doesn’t work properly.

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Twitter Updates for 2010-01-14

January 15th, 2010 Comments off
  • At the doctor getting my first of two 6 hour iron infusions. This is to treat my anemia and hopefully give me more energy. #

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Twitter Updates for 2010-01-13

January 14th, 2010 Comments off
  • About to have lunch with a friend at Chedd's Gourmet Grilled Cheese. Mmmmmm grilled cheese :-) . #

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Twitter Updates for 2010-01-08

January 9th, 2010 Comments off

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Twitter Updates for 2010-01-06

January 7th, 2010 Comments off
  • Not being very productive today but having a good time doing it! #

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Twitter Updates for 2010-01-05

January 6th, 2010 Comments off
  • Um, we finally got approved for Medicaid retro to Nov. 1. That means most of my $20k radiation bill should be wiped out along with others! #

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Twitter Updates for 2010-01-03

January 4th, 2010 Comments off
  • I love my church. We couldn't make it today because of sick kids but still got to watch service live via the internets. #

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Twitter Updates for 2009-12-29

December 30th, 2009 Comments off
  • Another miracle! Was just told that my current stay in the hospital, no matter how long, will only cost us $100. Thank you God! #
  • And even more good news! All my blood levels are where they need to be and I am going home after lunch today. I am truely blessed! #
  • Little kids screaming and fighting – yep, I'm home from the hospital. #

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Twitter Updates for 2009-12-28

December 29th, 2009 Comments off
  • Temp still in the 98's and white blood count up but just a little. Doc says if it keeps trending up over next few days I go home :-) . #
  • Thank God! Just had the $21k hospital bill from my first cancer stay completely forgiven by the hospital. Thank you St. David's! #

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Twitter Updates for 2009-12-27

December 28th, 2009 Comments off
  • My temp has been in the 98's all day which is good. White count is down but they barely gave me the medicine for that this afternoon. #

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Twitter Updates for 2009-12-26

December 27th, 2009 Comments off
  • Bummer. I developed a fever overnight which hasn't broken so I now need to go to the emergency room. Cancer recovery and fevers don't mix. #
  • White Blood counts are low so they are admitting me to the hospital for atibiotics and something to increase the white count. #
  • Woot! They actually have a menu for food at this hospital. I order breakfast, lunch, and dinner as a single meal! #
  • Just been told by the doc not to have visitors so I can get over what I have and not pick up anything else. My wife can't even stay w/me :-( #

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Twitter Updates for 2009-12-22

December 23rd, 2009 Comments off
  • I must be feeling better. I am doing laundry this morning. #

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Twitter Updates for 2009-12-21

December 22nd, 2009 Comments off
  • I'm starting to feel good enough that I am getting cabin fever by being at the house all day. May need to escape to Starbucks for a while… #

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Twitter Updates for 2009-12-18

December 19th, 2009 Comments off

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Twitter Updates for 2009-12-17

December 18th, 2009 Comments off
  • At the doctor to get some test scheduled to hopefully verify that the cancer is GONE!!!! #

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